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Chinese Immigrant Caregivers: Understanding Their Unmet Needs and the Co-Design of an mHealth App

Published online by Cambridge University Press:  17 May 2024

Kexin Yu*
Affiliation:
NIA-Layton Aging and Alzheimer’s Disease Center, and Oregon Center for Aging & Technology, Department of Neurology, Oregon Health & Science University, Portland, OR, USA Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA, USA Edward R. Roybal Institute on Aging, University of Southern California, Los Angeles, CA, USA
Haojun Jiang
Affiliation:
Tourism and Social Administration College, Nanjing Xiaozhuang University, Nanjing, China
Mandong Liu
Affiliation:
Research Institute of Social Development, Southwestern University of Finance and Economics, Sichuan, China
Shinyi Wu
Affiliation:
Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA, USA Edward R. Roybal Institute on Aging, University of Southern California, Los Angeles, CA, USA Daniel J. Epstein Department of Industrial and Systems Engineering, Viterbi School of Engineering, University of Southern California, Los Angeles, CA, USA
Maryalice Jordan-Marsh
Affiliation:
Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA, USA
Iris Chi
Affiliation:
Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA, USA Edward R. Roybal Institute on Aging, University of Southern California, Los Angeles, CA, USA
*
Corresponding author: La correspondance et les demandes de tirésàpart doivent être adressées à : / Correspondence and requests for offprints should be sent to: Kexin Yu, Department of Neurology, Oregon Health & Science University, Portland, OR 97239, USA (yukex@ohsu.edu).

Abstract

Background

Immigrant caregivers support the aging population, yet their own needs are often neglected. Mobile technology-facilitated interventions can promote caregiver health by providing easy access to self-care materials.

Objective

This study employed a design thinking framework to examine Chinese immigrant caregivers’ (CICs) unmet self-care needs and co-design an app for promoting self-care with CICs.

Methods

Nineteen semi-structured interviews were conducted in conceptual design and prototype co-design phases.

Findings

Participants reported unmet self-care needs influenced by psychological and social barriers, immigrant status, and caregiving tasks. They expressed the need to learn to keep healthy boundaries with the care recipient and respond to emergencies. Gaining knowledge was the main benefit that drew CICs’ interest in using the self-care app. However, potential barriers to use included issues of curriculum design, technology anxiety, limited free time, and caregiving burdens.

Discussion

The co-design process appears to be beneficial in having participants voice both barriers and preferences.

Résumé

RésuméContext

Les aidants issus de l’immigration apportent du soutien à la population vieillissante, toutefois leurs propres besoins sont souvent négligés. Les interventions médiées par la technologie mobile peuvent promouvoir la santé des aidants en leur facilitant l’accès à de la documentation sur les autosoins.

Objectif

Cette étude a utilisé un cadre de réflexion conceptuelle pour examiner les besoins d’autosoins non satisfaits chez les aidants immigrés de Chine, et collaborer avec eux à la conception d’une application visant à promouvoir les autosoins dans cette population.

Méthodes

Dix-neuf entrevues semi-structurées ont été menées au cours des phases de conception du modèle et de conception collaborative du prototype.

Résultats

Les participants ont fait état de besoins d’autosoins non satisfaits, en citant l’influence de barrières psychologiques et sociales, du statut d’immigré et des tâches d’aidant. Ils ont exprimé le besoin d’apprendre à maintenir des limites saines avec le bénéficiaire des soins et à répondre aux situations d’urgence. L’acquisition de connaissances est le principal avantage qui a suscité l’intérêt des aidants immigrés de Chine à utiliser l’application d’autosoins. Cependant, les obstacles potentiels à l’utilisation de l’application sont la conception du programme, l’anxiété liée à la technologie, le manque de temps libre et le fardeau de la prestation de soins.

Discussion

Le processus de conception collaborative semble être bénéfique dans la mesure où les participants expriment à la fois les obstacles et les préférences.

Type
Article
Copyright
© Canadian Association on Gerontology 2024

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